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ABOUT THE BOOK
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Do you know what a Bubble Boy is? Most people don’t!
Come join Jakob and his loyal buddy Buvo as they stretch their imaginations on dirty Friday. Follow them on their adventures where monkeys sing fruit songs, and the ocean holds surprises. Beautifully illustrated, In My Magical Bubble is a meaningful gift that shares the story of a Bubble Boy, his condition, and his will to keep fighting for his life. Love, courage, and dreams are the foundation; where people of all ages will learn more about ‘The Bubble Boy condition’, and there just might be a cleanliness reminder or two thrown in! |
ABOUT JAKOB
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JAKOB KAMIL GUZIAK is the inspiration behind this magical children´s book. He is an ADA SCID toddler, also known as a “Bubble Boy.” Jakob was born in August 2019 with no immune system to fight infections or colds and was diagnosed with ADA SCID 10 days after he was born. Every day he must fight to survive his condition and medical expectations.
Jakob has been part of different campaigns for the Canadian Blood Services, Swab the World and the University of Alberta Blood for Life. Pattison Outdoor and William Huff Advertising donated two incredible billboards to support his life campaign in the city of Edmonton and at Rogers Place and thanks to Bell Media´s generosity, they launched their very first billboard campaign in the Greater Toronto Area in April 2021. |
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This cheerful toddler made his first debut in CityNews Edmonton, then Global News Edmonton, CTV News and even at the House of Commons. His name has also been part of Radiothons, and different articles around the world have been published to recognize the importance of his fight. He won´t stop and his parents either until he receives Gene Therapy, the only permanent option that could save his life.
He loves to dance and watch the birds, and through his story, Jakob hopes to raise awareness about ADA SCID; gene therapy; blood, plasma, and stem cell donation. Buy it, enjoy it and share your love and support for this Little Fighter.
He loves to dance and watch the birds, and through his story, Jakob hopes to raise awareness about ADA SCID; gene therapy; blood, plasma, and stem cell donation. Buy it, enjoy it and share your love and support for this Little Fighter.
ABOUT THE AUTHOR & ILLUSTRATOR
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Debut author PAOLA ANDREA FERNÁNDEZ DE SOTO ABDULRAHIN is a screening officer by day and a blogger by night. She received her Bachelor of Arts in Advertising and Communication from Autónoma de Occidente University. In addition to working on her son´s blog and being a dedicated mother, she is also fighting her personal battle with cancer. Born in Colombia, and now living in Canada, Paola is a lover of naps, music, and all types of projects.
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LUZ ADRIANA MANOZCA is a designer and illustrator for brands, packaging, web, and editorial projects. She finds inspiration on the streets of New York City, her new home. Ever since she was little, Luz’s father read and illustrated children's books in their family home, which generated Luz’s special interest in drawing. She studied graphic design and illustration for children's literature in Colombia, where she was born and raised. For more of Luz’s work, visit her site and follow her on social media.
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CONTACT ANDREA
